Already NOW 823 days after the surgery and STILL pain, doesn’t go away! On the pain scale I am again on 8-10 and NOW I got again antibiotics ===> AUGMENTIN 1.000 mg/62,5 mg <===. They helped last time, so hopefully ALSO this time. I will be soon on “Disability Pension” (early Retirement due to health problems) and waiting till I get the first check paid. After that I will visit the doctor again to sort out the problem, if necessary a new surgery might be possible as it is probably an allergic reaction to the mesh repair. This is nearly by 100% sure as I had a 5 hour examination from a Prof.Dr. XXXX on 15.10.2012 where they mentioned a possible infection also in their report!
Below is an image that shows what a hernia looks from inside…
The image credit goes to (a great website in German, who explains very well…):
Day 518 after the surgery… More than 1 year!
As I had an appointment on April 17, 2013 with the surgeon, here what happens: for the surgeon there are NO problems; he sent me to someone else specialized in pain treatment. BUT the funny about that is that this service isn’t anymore existing in the same hospital where he is working 😦 NOR that these consultations will get paid back by the social insurance… One consultation would cost 150 €, which is about 194 US$, a lot of money and this without any warranty.
Now comes the most interesting and nearly unbelievable; I had a serious flu and my family doctor prescribed me antibiotics, guess what happens? My pain in the scrotum nearly disappeared completely, I am feeling much more happy now. I still will try to get an appointment soon by my family doctor to find out how we can get the pain completely away. I want also an answer on why the pain disappeared by taking antibiotics and why they left me for more than 500 days in pain…
Date: March 31, 2013
Day 465 after the surgery… More than 1 year!
As I am still on pain level 6/10 and that I have ONLY an appointment on April 17, 2013 with the surgeon, so I decided to collect some information about chronic pain after an inguinal hernia surgery. Apparently 10-16%, some say even 30% of patients suffer from chronic pain after the inguinal hernia surgery. Here below my link collection in different languages (I am multilingual…):
- http://www.leistenbruch-muenchen.com/ (German)
- http://www.spiegel.de/spiegel/print/d-63806951.html (German)
- http://www.bncev.de/index.htm?/fachartikel/artikel_2008/artikel_feb08/20001m_250208_c.htm (German)
- https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2075594/ (English)
- http://online.wsj.com/article/SB10001424052970203833004577249344022834000.html (English 2012)
- http://hernia.ucla.edu/body.cfm?id=42 (English)
- http://www.groinhernia.net/index.php/en/articles/155-kronik-agri-sendromu.html (English)
Date: March 20, 2013
Day 454 after the surgery… More than 1 year!
Yesterday I got the results from last colonoscopy, a very good one! NO CANCER found anymore, but although they found a new polyp of 1cm diameter (0.4 inches), but not presenting cancer! I am feeling very HAPPY about that. Next colonoscopy will be in a year, it is BETTER to control it, one never knows…
I am still on pain level 6-7/10 and so I had also yesterday an appointment with the family doctor where I got a prescription for a new medication, “LYRICA 75mg“, a medication which should calm the pain in the nerves…
My pain story started after a surgery of two inguinal hernias, and after all the examinations done by an UROLOGY specialist this one didn’t find any UROLOGY problems and told me to visit again the surgery specialist to find out from where the pain comes. But he told me also that it would be probably a nerve or some nerves who were getting touched or other possibility also is that the nerves are getting touched by the implanted artificial net…
Wait and see… Tomorrow I will contact the surgery specialist to get an appointment again..
Date: March 11, 2013
Day 445 after the surgery… More than 1 year
The pain is increasing again and I am now on pain scale level 6/10, not knowing what is happening!??? My moral is (???), need to fight hard to net letting me go down! It’s too long anyway, I need to upgrade my courage as I start to rant too much on Social-Media, not good 😦
I am NOT anymore the person I was before the operation, I wish to become the same again as I start to hate myself for what I am now (mentality)! No life quality anymore with chronically pain, it starts slowly to destroy me, even spouse told me that I changed too much; not good at all to hear it from her…
Date: March 09, 2013
Day 443 after the surgery… More than 1 year
I finished all the tests on Urology and the doctor says that there are no Urology problems! OK, good news, but still on the pain which increased again! I am now on 4-5/10 on the pain scale. The doctor told me that I should visit again the surgery doctor, probably there were some nerves touched during the surgery. Will the pain ever go away or must I stay for the rest of my life with it, not feeling confident at all anymore…
I had also a colonoscopy again, 6 months after the last check up as on the last check up a polyp from 2 cm in diameter (0.8 inches) was found. A new polyp was found with already 1 cm diameter (0.4 inches) after only 6 months! On March 19, 2013 I will know then the results…
Never ending story, to be continued…
Date: January 30, 2013
Day 405 after the surgery… More than 1 year
Yesterday I visited my Urology Doctor again, probably for the last time. He told me that there is NO Urology problem and that possibly some nerves were getting touched during the surgery and that’s why there is still some pain. He told me to visit again the doctor who made the surgery, endless story… SO, I will try to get a new appointment to find out what it is definitely and hopefully it will get sorted out and hopefully I will get some medication to get rid of the pain…
Date: December 18, 2012
Day 362 after the surgery… Nearly 1 year 😦
I got a P.E.T. scan who revealed infections in the scrotum and a Cystoscopy will be made on Thursday December, 18. After I took antibiotics “Ciproxine 500mg” I feel already much better, but still problems with pain. Hopefully on Thursday they will find the answer about my persistent problems…
Date: November 16, 2012
Day 330 after the surgery…
The pain is getting stronger again, can’t leave without taking “Diclofenac” medication 😦 Yesterday I made a Scintigraphy with Gallium and today a Scintigraphy with Technetium. I have seen the doctor after the Scintigraphy but she couldn’t tell me yet and told me to wait till mid next week! So next week my house doctor will get the results and me also then, but she asked for probably the necessity for a P.E.T. scan… Wait, see and hope…
Date: October 02, 2012
Day 285 after the surgery…
As I made recently a colonoscopy I had to visit the specialist (I got a phone call to make an appointment) which I did 2 weeks ago. I got explained that they found a polyp of 2 cm diameter and that the biopsy revealed growing cancer cells in the polyp! I was shocked, but I got told that as long as the cancer cells are ONLY found in the polyps that there isn’t any problem as long as it is not moving into the colon.
I should do now once every year a colonoscopy as a prevention to detect eventually found polyps! But as I am a bit proactive thinking I asked to do the first one already in 6 months, in March 2013.
See below a video on a Colon polyp removal with a colonoscope:
So, that’s meant that I am now a risk patient!!! But as I did on a regular base (every 2 years) since 14 years already a colonoscopy they detected it by time! I suggest anyway to anybody to do a colonoscopy also up from age 40-45, especially men.
First of all I need to get my brain used to that, that’s the difficult part of it, not easy at all…
I am still on the pain as well and hopefully one day doctors will find out from where it does come, not funny at all to live like that 😦
What’s a polyp and what’s a colonoscopy?
Date: September 19, 2012
Day 272 after the surgery…
There are probably different problems as my house doctor said, problems with the bladder, the back and perhaps also the possibility of an inflammation due to the implanted artificial nets to close the holes in the tissue…
I found out also this on Wikipedia and will ask my doctor(s) about it after the next tests are made: “Neuropathic pain is defined as pain in the sensory distribution of an offended nerve. This may be due to preexisting stretch injury or intraoperative nerve injury. It is often described as stabbing and burning. Nociceptive pain includes somatic and visceral pain. Somatic pain may be due to chronic inflammation from tissue injury and is described as gnawing, tender, and pounding. Visceral pain can manifest as testicular and ejaculatory pain which may be associated with mesh ingrowth into spermatic cord structures…
- Post-operative Inguinodynia from Hernia Surgery
- Inguinodynia as a hernia post-operative chronic pain syndrome may occur due to an assortment of causes including mesh shrinkage, inflammation, scarification, as well as surgical technique.
This above is ONLY something which I will ask the doctor(s) after some tests are made and nothing else would be found, I don’t make a self-diagnostic! But I want to be informed about what is going on and helping myself to get out of this never ending story…
So now on October 17, 2012 I will get a flexible “Cystoscopy” to find out what problems are with the bladder (there are some…) and after that probably also a “Scintigraphy” to find out if and where are some inflammations…
See below some videos about “Cystoscopy”:
Once again, I don’t make a self-diagnostic and videos are ONLY published for my own curiosity (I want to know what’s going on before the intervention…) and visitors could see it also if wanted so…
Day 256 after the surgery…
As already said in previous post there are still some problems of not natural pain to get sorted out! I made already some new scans and also MRI (IRM en français) and the last one was an echo-graph; a control with ultrasonic… Waiting for Thursday to get the report from my medical, but already knowing that there is something strange!!!
To be continued… :(((
Date: March 25, 2012.
I had a new scanner to find out what is going on on February 24, 2012… nothing found, good news! Doctor told me that it is “normal” that it takes that long to recover as I had a big hematoma and that my Inguinal Hernias are dating from very long and that they were scared already, so it was a very difficult surgery… with lots of internal interventions…
I got told also now that I can again work a bit at home and that’s the best news I had for months… The feeling of an “normal” person comes back slowly, LOL 😉 I have a lot of Home gardening to do and also to make renovation of one room at home, this needs now after 2 years get done as it wasn’t possible that long because of my surgeries!!!
Nearly 2 years ONLY allowed to sit close to the computer without any other activities, a hard time… I am very happy, feeling like free again :-))))))))))
But bad news are that I lost my job due to those surgeries, more than 52 weeks on sick-leave in 2 years, but at least I get payed 80% of my last salary from the Employment Office for one year period… while searching with 57 years old a new job, not easy at all… probably mission impossible…
But I use my experience in IT-Security and trying even different ways to find a job over Internet, check out here:
Date: February 07, 2012.
Day 78 after the surgery, still pain about 6/10 on pain scale and nearly no swelling and hematomas (bruises) anymore, at least this…
I passed a very bad week with a lot of pain (???). On February 02, 2012 I had a control in hospital and I will need a new scanner to find out what is going on on February 24, 2012…
Date: January 31, 2012.
Day 71 after the surgery, still some pain and nearly no swelling and hematomas (bruises) anymore, at least this…
I passed a very bad week with a lot of pain (???), no idea what happens, but actually today I feel good. Yesterday I played for +/- 2 hours Darts in my old Pub which I visit since more than 40 years… I didn’t play darts for the last 6 months because of my surgeries, but I felt very good yesterday and I even won most of my matches (legs) and this without having practicing, WOW 😉 was a great feeling, my moral went up and today no problems :))))))))))))))
Pain level is now at 5/10 and the new drugs “Diclofenac” helps me a lot to get away the inflammation in my genitals, slowly but surely… Feeling like having a bit more Power in the body now, hope this will continue and even getting better. I can’t cope anymore with pain; wish to see the day coming without any pain anymore and to feel like a normal human again. I don’t wish even this to my worst enemy, not funny at all :((((
On Thursday 02 February, 2012 I will have the next control in hospital…